InterConnect Support Public Blog

  The following story by Jeanne Nollman was published in 429 Magazine in March 2013:     Walking across the University of Arizona campus the warm heat soaked through me in the Tucson desert.  I was a 25-year-old woman about to graduate and had just ended a long-term relationship.  My family was located on the east coast and I was alone, about to face a far greater challenge than either my college studies or relationships could have prepared me for. That day I had an appointment with my doctor at the university health center.  I would find out what was in my medical records from testing and surgery dating back to when I had been 18 years old.  I had flown to New York the previous summer to hand deliver a written request for my medical records to the hospital where the testing had been performed.  I had to go in person because months earlier, my doctor had made a written request for the records to Albany Medical Center in New York, and they responded that there was no record of me ever h

   July 18-21, 2013     Every summer, the AIS-DSD Support Group hosts a conference in a different North American city.  We come together as individuals and families affected by DSD for an unforgettable few days of support, education, and fun. This year’s conference in historic Boston, Massachusetts will also include a new track for men with DSD.  As always, there will be programs on Friday and Saturday specifically designed for affected adults, teens, parents and families. Registration and informal social gatherings will begin on Thursday late afternoon/early evening.  The traditional programming will conclude at noon on Sunday, and an exciting new advocacy program will be offered to those who want to stay through the afternoon! REGISTRATION : Opens April 1, and space is limited – Please register early! The conference fee will remain at the 2012 rate of $225 for those who register before May 15th ($25 Savings!), and $250 after that date.  Registration includes all conference workshops